Our Foundation Mission:
Our mission is to educate the public as to the seriousness of Alzheimer’s, Dementia and Traumatic Brain Injuries (TBI) by raising the necessary donations to accomplish our objectives. We are also dedicated towards helping fund the necessary research to find a cure for both Alzheimer’s and Dementia while promoting awareness, education, and research funding in the area of improved safety standards to prevent traumatic brain injury which is a possible precursor to CTE (chronic traumatic encephalopathy. We believe it is our cutting edge foundation’s time to receive some of the monies currently being so generously donated in the “Finding a Cure” world both at the private and corporate levels. Our “Forgotten Seniors”, their caregivers, and the millions of Americans involved in sports, recreational activities, and military service suffering from traumatic brain injuries deserve their fair share and attention!
Why are we different?
- First foundation to identify with Alzheimer’s, dementia and TBI (Traumatic Brain Injury).
- While Alzheimer’s afflicts 5.5 million Americans, the numbers for dementia are nearly double that at over 10 million Americans.
- Traumatic brain injuries (TBI) that may lead to CTE are increasing at an alarming rate in sports, recreational activities and through military service. Collectively, the number is effecting nearly 1 million Americans.
- The only foundation to have a face of the disease: Mr. John ORavitz, “THE Johnny O” (see website for video)
- Our cutting edge foundation business model allows us to focus more on raising money for research and awareness instead of the old line foundation business models that spend heavily on salaries, redundant multiple chapter locations, heavy publishing expenses, etc. Some of these foundations donate less than 5% to research and have operational expenses in excess of 90%
- We partnered in 2012 with the Matthew Gfeller Sport - Related Traumatic Brain Center at the University of North Carolina - Chapel Hill. The Director Dr. Kevin Guskiewicz is world renowned for his work with helmet technology and concussion research with the NFL, NHL and the NCAA. Kevin on the concussion committee for all three organizations’ and has developed the sensor system in football helmets (Riddell).
We have also received a great deal of information and input from Jack Foley the Assistant AD/ Director of Sports Medicine at Lehigh University. Lehigh University is viewed as one of the pioneers in TBI/Concussion as it pertains in offering the student athlete a total proactive program. The Lehigh program and procedures will be part of our newly developed Sports, Action Sports and Military TBI response awareness project.
In April of 2013 our foundation decided to add future philanthropic support to the work being done at the Boston University School of Medicine and in particular, the Center for the Study of Traumatic Encephalopathy focused in on CTE, TBI, Alzheimer's and Dementia.
In June 2013, we agreed to work with the UCLA Brain Injury Institute and Dr. David Hovda the Director to help raise research funding and awareness on the number of projects the brain injury institute is currently working on. At the same time we committed to raising funds to support a really great outreach program in Southern California. The Alzheimer's Service Center headquartered in Huntington Beach, CA. It is a unique facility, which offers daycare and other unique therapy programs to Alzheimer's patients and their families. It is our belief that these types of services can only benefit mankind.
Why should you get involved?
- The Johnny O Alzheimer’s, Dementia, and TBI Awareness Foundation is a Phoenix-based 501 (c) (3) charity
- The lack of attention as to the seriousness of these diseases is alarming and is only recently getting the attention they deserve.
- While changes in selected causes of death in the last 10 years for stroke, prostate cancer, breast cancer, heart disease, and HIV have been in decline, the deaths caused from Alzheimer’s and have increased by an alarming 66% over this same time frame.
- Alzheimer’s, Dementia and TBI research is vastly under funded given the enormity of these problems. Why, you ask?
- 1 in 8 Americans will be diagnosed with these diseases in their lifetime and every 68 seconds there is a new diagnosis!
- There were nearly 1 million reported traumatic brain injuries in 2011 and these unfortunate events may lead to CTE.
Where is the money going?
- Up to 30% to our research partners
- Up to 30% to our outreach and awareness programs
- Up to 40% to foundation support
Goal in Year 2012: $1,000,000
YTD Donations: $234,000 (began on 5/1/12)